Most people, whether they are conscious of it or not, have the potential to choose what they want to do and when they want to do it. Granted, circumstances like not having enough money or working hours do limit that potential, but likely they have enough energy to do what they want.
With a chronic illness, life can get very complicated. You may choose a nap over going to see a friend. You may choose to not shop for groceries because you don't have enough energy. You may put off having a shower because it just feels like too much of a mountain to climb today. Yes, very often you end up friendless, hungry and smelly!
It's not having to make those choices but the consequences that are frustrating. Often you may have family or friends wonder why they haven't seen you in a while, you may have to cancel lessons or outings with your friends last minute which leaves them frustrated.
Life with chronic illness is a fine balance, a balance I get all too wrong, all too often.
To those who are living with chronic illness, do your best, everyday is different, be positive and look on the bright side of every bad day.
To those who love and support those of us with chronic illness - we don't mean to frustrate you. Understanding our circumstances is the greatest gift you could ever give us. We love you and are so thankful you're sticking around to help us.
Much love, Beth xxx
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